You (or your child) are invited to join a research project that will develop a registry for patients with Neurofibromatosis 1, Neurofibromatosis 2, and Schwannomatosis. The Contact Registry is a research effort that aims to inform patients and/or parents of patients about available clinical research studies performed for Neurofibromatosis. Joining the Registry will help researchers identify and recruit patients who are eligible for participation in future research studies, including research to find new treatments, better markers of disease, and the cause of these diseases.
Through Research We Can:
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Volunteers make it possible for researchers to find new treatments, create new studies, and work for the improvement of all our lives. By joining our contact registry, you are contributing not only to our research but to the future of all who have Neurofibromatosis. The continued efforts of researchers may someday save lives and improve the quality of life for individuals with Neurofibromatosis. Their work is one part of this important equation, the other part is you.
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Welcome to the Florida Neurofibromatosis Research Network (FNRN)! The FNRN is a new resource for Neurofibromatosis (NF) families who are interested in participating in clinical trials and NF research. By taking the time to register, you and/or your family member(s) will have opportunities to enroll in NF research. The goal of this network is to promote the development of novel NF research and to enhance research outcomes by connecting researchers and families, increasing the number of research participants. Through this site you may find out more about the Florida Neurofibromatosis Research Network, enroll in the network, and link to web sites where you can learn more about NF. |